Are you interested in becoming more engaged with the Sturge-Weber Foundation? We are counting on it. As a small foundation of a rare disease, we need to join hand to help raise funds and spread awareness and hope for individuals affected and living with Sturge-Weber syndrome and related port wine birthmark conditions. So many aspects of these rare conditions are out of our control but our ability to raise money, raise awareness and support each other is within our control if we have the will to do it.
What we do today, makes their tomorrows even better!
Check out the Volunteer E-News Below!