Newsroom

If you want to be in the know about what’s going on at our organization, you’ve come to the right place.

Be sure to check back regularly to get our latest news updates.

Halloween can be even more meaningful this year by promoting an altruistic lifestyle and giving back to your community. Check out these 13 spooky Halloween fundraising ideas.

Focusing on positive thoughts can actually impact your overall health. How, you ask? Today we dive in and see how positive thoughts can make you healthier.

An Invitation to Our Steadfast Senior Members

We would like some ideas from our senior members, people with SWS who have been living with SWS,KT and PWB and who have amassed a wealth of knowledge and experience and would like to share it.

We want to develop guidelines for upcoming generations. Will you let us know the medical concerns you face now, or have learned to deal with. Right now you only have to let me know that you are interested in being a "senior resource" for future publications either print and on the website. A simple example would be "when did you find that your blood pressure needed better control" or "how did your skin change in your 40's"

Parents of adults with SWS can also give us pointers based on their experience and would provide valuable information. Many aspects of maturing may have no connection to SWS, but some may. Let's get the list on the table.

Of course we will also seek input from physicians and will seek their guidance. But we want to hear from the people on the front lines. You can just email me and let me know that you are interested in joining our "Growing Golden with SWS" project. I don't want to limit it by age. You know what you have lived with.

Think of it this way - can you say "If I had known I would have xxxxx now, I would have taken care of xxxxx sooner". Contact Anne Howard, ahoward@sturge-weber.org.

For individuals and their families, the words “You need a new organ” are earth-shattering. Luckily, we can make a difference. Check out five reasons for you to become an organ donor.

When things are busy, wellness often takes a backseat to other priorities. Luckily, today we thought of a couple ways to bring it back to the forefront of your life.

While every individual is unique and has their own preferences, there are some general guidelines to follow when interacting comfortably and respectfully with people with disabilities.

How can you celebrate Peace Officers Memorial Day and National Police Week and pay homage to officers around the country? Here are some ideas to get started.

If you’re looking for cool ways to donate your gently used items, check out this list of things you can and should donate, and some unique ideas of where to give them.

Our words are powerful, and should be treated with respect. So how do our words impact others, and how can we choose them wisely? Today, we’re going to find out.

Self-defeating thoughts can come when we least expect them and tear down our self-esteem and break our spirits. So how can we stand up to them and choose joy instead?

When we practice mindfulness, we train our brain to refocus on current surroundings, leaving us in a more peaceful and relaxed state. If you want to practice mindfulness, check out these easy steps.

How do we pay attention to current events while still living positively? Well, today we're going to find out. Check out these tips for how to positively live a positive lifestyle.