Newsroom

If you want to be in the know about what’s going on at our organization, you’ve come to the right place.

Be sure to check back regularly to get our latest news updates.

If you’re considering volunteering with a cause you care about in the community, consider the benefits you can receive. Here are the top eight benefits of volunteering.

The goal of this Fellowship is to support patient-oriented research, basic science research, or translational studies relevant to Sturge-Weber syndrome or related conditions.

If you try to live altruistically, then combating your own loneliness can play a vital role in how you serve others. Here’s how to overcome loneliness in everyday life.

Mentoring a child helps them to see unlimited possibilities for the future, learn something new and most importantly, realize that somebody cares about them.

While it might seem simple to say talents can help others, actually identifying your talents and putting them to good use can be a little bit more difficult.

In the wake of recent events in the media with scandals, shootings and discord leading the headlines, it occurred to me that at the heart of it all is family, values and communication. Lead by example. Talk over the dinner table each night, restore or heal broken families, promote integrity and personal responsibility, bring up intolerance and what that looks like and so much more!

Stephen Peltier, a support of the Sturge-Weber Foundation, has accepted the position of Treasurer on the Sturge-Weber Foundation's Board of Directors.

It’s true: with a lack of Vitamin D and little time spent outdoors, the winter months can literally make you sad.

Luckily, maintaining a habit is doable when set up for success. If you want to be start (and keep) a healthy new habit this year, check out these useful tips.

New year’s resolutions are a great way to focus your year on things other than yourself—to focus on living a more altruistic lifestyle and giving back to others.

As we dive into the season of giving this month, let’s explore how the very action of giving can lead to a more altruistic life, improve our mood and even makes us happy.

With Thanksgiving behind us and the winter holidays coming up, how can you make others feel warm during the cold season? We have some ideas to get you started.

Gratitude is about more than taking a second to say “Thanks.” Gratitude shows true appreciation. This Thanksgiving, we have some ideas for how you can give gratitude.

How can you spread the cheer by giving back? We have five altruistic ideas for the holiday season that just might do the trick.

When a friend or family member gets sick, it’s difficult to see them lay in bed stifling their sniffles and running a fever. What can you do to make them feel better?

Focusing on positive thoughts can actually impact your overall health. How, you ask? Today we dive in and see how positive thoughts can make you healthier.

An Invitation to Our Steadfast Senior Members

We would like some ideas from our senior members, people with SWS who have been living with SWS,KT and PWB and who have amassed a wealth of knowledge and experience and would like to share it.

We want to develop guidelines for upcoming generations. Will you let us know the medical concerns you face now, or have learned to deal with. Right now you only have to let me know that you are interested in being a "senior resource" for future publications either print and on the website. A simple example would be "when did you find that your blood pressure needed better control" or "how did your skin change in your 40's"

Parents of adults with SWS can also give us pointers based on their experience and would provide valuable information. Many aspects of maturing may have no connection to SWS, but some may. Let's get the list on the table.

Of course we will also seek input from physicians and will seek their guidance. But we want to hear from the people on the front lines. You can just email me and let me know that you are interested in joining our "Growing Golden with SWS" project. I don't want to limit it by age. You know what you have lived with.

Think of it this way - can you say "If I had known I would have xxxxx now, I would have taken care of xxxxx sooner". Contact Anne Howard, ahoward@sturge-weber.org.

For individuals and their families, the words “You need a new organ” are earth-shattering. Luckily, we can make a difference. Check out five reasons for you to become an organ donor.

When things are busy, wellness often takes a backseat to other priorities. Luckily, today we thought of a couple ways to bring it back to the forefront of your life.

While every individual is unique and has their own preferences, there are some general guidelines to follow when interacting comfortably and respectfully with people with disabilities.

If you’re looking for cool ways to donate your gently used items, check out this list of things you can and should donate, and some unique ideas of where to give them.

Our words are powerful, and should be treated with respect. So how do our words impact others, and how can we choose them wisely? Today, we’re going to find out.

Self-defeating thoughts can come when we least expect them and tear down our self-esteem and break our spirits. So how can we stand up to them and choose joy instead?

When we practice mindfulness, we train our brain to refocus on current surroundings, leaving us in a more peaceful and relaxed state. If you want to practice mindfulness, check out these easy steps.

How do we pay attention to current events while still living positively? Well, today we're going to find out. Check out these tips for how to positively live a positive lifestyle.