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X-WR-CALDESC:Now in its 12th year\, Rare Disease Week on Capitol Hill empow
 ers and inspires hundreds of advocates each year. The connections you make
  during the week will impact rare disease patients for generations to come
 .\n\nHosted by the Rare Disease Legislative Advocates (a program of the Ev
 eryLife Foundation for Rare Diseases)\, the multi-day event brings togethe
 r rare disease advocates from across the country to make their voices hear
 d by their Members of Congress. Participants are educated on policy propos
 als impacting the rare disease community and provided opportunities to adv
 ocate for policy changes directly to their Members of Congress.\n\nNo matt
 er one’s connection to a rare disease or their advocacy experience level\,
  all are welcome.\n\nNOTE: Rare Disease Week on Capitol Hill 2023 is an in
 -person event with some events accessible via live stream. Meetings with M
 embers of Congress are in-person only.\n\nSome Events:\n• Young Adult Rare
  Representatives (YARR) Meetup\n• Rare Disease Day at NIH\n• Rare Disease 
 Documentary Screening and Reception\n• Rare Artist Virtual Gallery\n• Hill
  Meetings
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DTSTART:20221106T020000
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RDATE:20231105T020000
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DTSTART:20220313T020000
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DTSTAMP:20260407T225815Z
DESCRIPTION:Now in its 12th year\, Rare Disease Week on Capitol Hill empowe
 rs and inspires hundreds of advocates each year. The connections you make 
 during the week will impact rare disease patients for generations to come.
 \n\nHosted by the Rare Disease Legislative Advocates (a program of the Eve
 ryLife Foundation for Rare Diseases)\, the multi-day event brings together
  rare disease advocates from across the country to make their voices heard
  by their Members of Congress. Participants are educated on policy proposa
 ls impacting the rare disease community and provided opportunities to advo
 cate for policy changes directly to their Members of Congress.\n\nNo matte
 r one’s connection to a rare disease or their advocacy experience level\, 
 all are welcome.\n\nNOTE: Rare Disease Week on Capitol Hill 2023 is an in-
 person event with some events accessible via live stream. Meetings with Me
 mbers of Congress are in-person only.\n\nSome Events:\n• Young Adult Rare 
 Representatives (YARR) Meetup\n• Rare Disease Day at NIH\n• Rare Disease D
 ocumentary Screening and Reception\n• Rare Artist Virtual Gallery\n• Hill 
 Meetings
DTSTART;TZID=America/New_York:20230228T080000
DTEND;TZID=America/New_York:20230302T170000
LOCATION:
SUMMARY:Rare Disease Week on Capitol Hill
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