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X-WR-CALDESC:Sponsored by the National Center for Advancing Translational S
 ciences (NCATS) and the National Institutes of Health (NIH) Clinical Cente
 r\, Rare Disease Day at NIH will be held both in-person at the NIH main ca
 mpus (Natcher Conference Center) and virtually on Thursday\, Feb. 29\, 202
 4\, from 9 a.m. to 5 p.m. EST. The event aims to raise awareness about rar
 e diseases\, the people they affect\, and NIH collaborations that address 
 scientific challenges and advance research for new treatments. The goals a
 re to: \n\n• Demonstrate the NIH's commitment to helping people with rare 
 diseases through research.  \n• Highlight NIH-supported rare diseases rese
 arch and the development of diagnostics and treatments.  \n• Initiate a mu
 tually beneficial dialogue among the rare diseases community.  \n• Exchang
 e the latest rare disease information with stakeholders to advance researc
 h and therapeutic efforts.  \n• Shine a spotlight on stories told by patie
 nts living with a rare disease\, their families\, and their communities. 
 \n \nRare Disease Day at NIH seeks to bring together a broad audience incl
 uding patients\, patient advocates\, caregivers\, healthcare providers\, r
 esearchers\, trainees\, students\, industry representatives\, and governme
 nt staff. The event is free and open to the public. Attendees are expected
  to exercise professionalism\, consideration\, and respect when speaking\,
  posting\, and communicating with others. This year’s event will feature p
 anel discussions\, rare disease stories\, in-person exhibits and scientifi
 c posters\, and an art exhibition. \n\nFree event.\n\nCLICK 'REGISTER HERE
 ' TO GET ALL THE DETAILS FOR IN-PERSON AND VIRTUAL.
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X-WR-TIMEZONE:America/New_York
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TZID:America/New_York
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TZNAME:EST
DTSTART:20231105T020000
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
RDATE:20241103T020000
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DTSTART:20230312T020000
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RDATE:20240310T020000
RDATE:20250309T020000
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UID:f7760c23-c119-457d-802a-e1bec491de3c
DTSTAMP:20260404T223843Z
DESCRIPTION:Sponsored by the National Center for Advancing Translational Sc
 iences (NCATS) and the National Institutes of Health (NIH) Clinical Center
 \, Rare Disease Day at NIH will be held both in-person at the NIH main cam
 pus (Natcher Conference Center) and virtually on Thursday\, Feb. 29\, 2024
 \, from 9 a.m. to 5 p.m. EST. The event aims to raise awareness about rare
  diseases\, the people they affect\, and NIH collaborations that address s
 cientific challenges and advance research for new treatments. The goals ar
 e to: \n\n• Demonstrate the NIH's commitment to helping people with rare d
 iseases through research.  \n• Highlight NIH-supported rare diseases resea
 rch and the development of diagnostics and treatments.  \n• Initiate a mut
 ually beneficial dialogue among the rare diseases community.  \n• Exchange
  the latest rare disease information with stakeholders to advance research
  and therapeutic efforts.  \n• Shine a spotlight on stories told by patien
 ts living with a rare disease\, their families\, and their communities. \n
  \nRare Disease Day at NIH seeks to bring together a broad audience includ
 ing patients\, patient advocates\, caregivers\, healthcare providers\, res
 earchers\, trainees\, students\, industry representatives\, and government
  staff. The event is free and open to the public. Attendees are expected t
 o exercise professionalism\, consideration\, and respect when speaking\, p
 osting\, and communicating with others. This year’s event will feature pan
 el discussions\, rare disease stories\, in-person exhibits and scientific 
 posters\, and an art exhibition. \n\nFree event.\n\nCLICK 'REGISTER HERE' 
 TO GET ALL THE DETAILS FOR IN-PERSON AND VIRTUAL.
DTSTART;TZID=America/New_York:20240229T060000
DTEND;TZID=America/New_York:20240229T060001
LOCATION:NIH Main Campus\, Natcher Conference Center (Building 45)\, 9000 R
 ockville Pike\, Bethesda\, MD 20892 US
SUMMARY:Rare Disease Day at NIH 2024 - Bethesda\, MD
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