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Dr. Dave Shahani, Neurologist and Epileptologist at Cook Children's Hospital, Fort Worth, TX, provides some important information on what to watch for with SWS migraines.

"Migraines in SWS can be quite painful and are not typical migraines, but rather migraine-like headaches that can be associated with a progression of symptoms."

Things to watch for include:

1. Depending on the location of loeptomeningeal angioma, watch for transient one-sided weakness, a transient visual change or preference to one side, transient confusion,
   or any sudden onset of neurologic symptoms.

2. Poor sleep

3. Dehydration (very critical during the summer)

4. Light or sound sensitivity

5. Unilateral throbbing of pain

The American Headache Society and the American Migraine Foundation can provide a good basic education on the causes and the most recent advances in treatment and therapy.
Their websites are reliable and reader-friendly.

Always remember to consult your neurologist, who knows your specific situation better than any website you find, for what would be the appropriate course of action.

Another resource we have mentioned frequently is the magazine Brain and Life, a publication of the American Academy of Neurology that you often see in doctor’s waiting rooms. It is a print publication that can be sent free to any individual requesting it. It is also available on-line.

Each month has articles explaining and enlarging on different neuro syndromes and disorders in non-technical language with additional material that provides specifics . The articles also give many real-life examples of people living with these, including articles on various aspects of seizure disorders.

Each issue highlights a well-known personality - TV, movies, music, sports – people you may have thought were talented and privileged and beyond reach of medical problems. Then you find out that they have, or care for someone who has, a neuro condition.

Go to for more information and to sign up for a subscription.