Did you know over 300 million people worldwide live with a rare disease? We know how hard it can be on patients and families who face all kinds of physical, mental, medical, and financial challenges caring for our rare disease. That is why there are Rare Disease events in the month of February.
Join us in celebrating all RARE Diseases. This year Rare Disease Day is February 28th but we encourage you to promote awareness of SWS, KT, and PWB all month long! Below are links to some graphics that you can use on your social media posts along with assets to use in schools.
Rare Disease Week on Capital Hill with the NIH
NORD Show your Stripes educational materials
Tag The Sturge-Weber Foundation and Use These Hashtags:
#SWFRareDisease #RareDiseaseDay #ShowYourStripes #sturgewebersyndrome