JOIN US IN PROMOTING SWF MONTH OF AWARENESS THIS MAY!

We are here for the Journey.

***Stay Tuned. We will have new awareness items and events for 2023!***

Each year, SWF promotes awareness of SWS during the month of May. Whether a patient or caregiver, this is our opportunity to showcase YOU through the victories and the struggles of living with Sturge-Weber Syndrome every single day.

This year we are focusing on the journey we all have traveled with SWS, PWS, KT, seizures, and glaucoma. 

We CELEBRATE the JOURNEY.  Everyone's journey looks different but one thing we have in common is the road we are traveling. Our road is full of joyous ups, rocky downs, winding curves, and points of view. And, along the journey, The Sturge-Weber Foundation has been here.

For 35 years we've been here for you. For a reason, a season, or a lifetime.

For us, it's always been about helping patients along their journey.

How can you help during SWF Month of Awareness (MOA)?