SAFE. PRIVATE. SUPPORTIVE. RESPECTFUL. ACCEPTING. CONNECTING. HOPEFUL.
Now there is another way to connect with others who live with Sturge-Weber syndrome and Port Wine Birthmark conditions. Introducing the Sturge-Weber Connection, an online community by Inspire.
The Sturge-Weber Connection is very similar to Facebook, but provides a much more private and safe environment for discussion on sensitive details about SWS and PWB. Our community will have control over personal information and how it is shared. Patient, caregiver and professional will be able to collaborate, share stories and discuss questions and concerns. And the best part is, it’s totally FREE to you.
Ready to join? Let’s get started then!
- Go to https://www.inspire.com/groups/sturge-weber-connection/
- Click on the button “Join This Community”
- Follow the basic instructions and register yourself.
- Once completed, you will receive a confirmation email.
That’s it, you are all set and ready to CONNECT!
Questions? Contact the Foundation at swf@sturge-weber.org or 973-895-4445.
