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Our Mission

The Sturge-Weber Foundation (The SWF) global mission is to improve the quality of life and care for people with Sturge-Weber syndrome and associated Port-Wine Birthmark conditions through tenacious collaboration with clinical partners and pioneers, education, advocacy, research and friendly support. Learn more and get involved.


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Multicenter Research Data of Epilepsy Management in Patients With Sturge-Weber Syndrome

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The Sturge-Weber Foundation’s 2021 Grant Program Accepting Applications Beginning June 15, 2021

The Sturge-Weber Foundation’s (SWF) international mission is to improve the quality of life for people with Sturge-Weber syndrome through collaborative education, advocacy and research support. SWF invites all qualified scientists at universities, hospitals and research institutions (not for profit or profit) to submit applications for SWF Research that supports research relevant to our mission.

The goal of the Program is to support patient-oriented research, basic science research, or translational studies relevant to Sturge-Weber syndrome or related conditions and investing in innovative clinical and basic researchers. We BELIEVE in creating an impact!

RESEARCH PRIORITIES

  • Studies of Disease Mechanism
  • Use of Novel Technologies
  • Bio-markers and Treatments
  • Cutting Edge and Translational Science
  • Innovations in Clinical Practice and Care
  • Understanding and Alleviating Disease Burden

Engagement Research Grant - up to $5,000 - 2 awards
Small seed research grants for emerging investigators intended to explore a new research concept, pilot a new experiment, undertake a novel or secondary data analysis, SWS Registry investigations and data mining.

Lisa’s Catalyst Research Grant - up to $40,000
Began in 2016 to honor a patient with Sturge-Weber syndrome. Candidates for Lisa’s Catalyst Research Grant may be post-doctoral (Ph.D. or M.D.) faculty members or newly appointed junior faculty members.

KEY DATES

  • June 15, 2021 - Invitation to submit application. Inquires welcome
  • July 23, 2021 - Full application due
  • August 12, 2021 - Announcement of awardees
  • September 1, 2021 - Award start date
  • June 30, 2022 - Award end date

FOR FULL DETAILS ON WHAT TO SUBMIT: 
https://sturge-weber.org/for-professionals/2021-swf-research-grant-program-application-process.html

CONTACT INFORMATION
Brian Fisher, COO
bfisher@sturge-weber.org
swf@sturge-weber.org
Office: 973.895.4445