I just LOVE the Fall season and all the harvest has to offer to nourish my body and soul. I’ve endured the dog days of summer knowing my season will soon be upon me. I believe each of us is born ready to learn, to celebrate and to endure.

After over 30 years of dealing with Kaelin’s challenges, I can take the wait and see approach as opposed to hold my breath and be ever ready to run! That attitude doesn’t mean we don’t have a plan and aren’t prepared for all the “What ifs” that are surely ahead. It means like the wild fire season in Colorado you learn to accept the things that are out of your control. You learn to savor every beautiful sunrise and sunset when your kids are giggling or trying to catch fireflies. You learn…this too shall pass.

The goal of this Fellowship is to support patient-oriented research, basic science research, or translational studies relevant to Sturge-Weber syndrome or related conditions.