After over 30 years of dealing with Kaelin’s challenges, I can take the wait and see approach as opposed to hold my breath and be ever ready to run! That attitude doesn’t mean we don’t have a plan and aren’t prepared for all the “What ifs” that are surely ahead. It means like the wild fire season in Colorado you learn to accept the things that are out of your control. You learn to savor every beautiful sunrise and sunset when your kids are giggling or trying to catch fireflies. You learn…this too shall pass.

The goal of this Fellowship is to support patient-oriented research, basic science research, or translational studies relevant to Sturge-Weber syndrome or related conditions.

In the wake of recent events in the media with scandals, shootings and discord leading the headlines, it occurred to me that at the heart of it all is family, values and communication. Lead by example. Talk over the dinner table each night, restore or heal broken families, promote integrity and personal responsibility, bring up intolerance and what that looks like and so much more!