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Myla's Mission 5k Walk & UTV Ride

Saturday, May 20, 2023
9:00 am2:00 pm
Greensburg, IN

Sturge-Weber syndrome (SWS) is a neurological disorder marked by a distinctive port-wine stain on the forehead, scalp, or around the eye. This stain is a birthmark caused by an overabundance of capillaries near the surface of the skin. Blood vessels on the same side of the brain as the stain may also be affected. A large number of people with SWS experience seizures or convulsions. Other complications may include increased pressure in the eye, developmental delays, and weakness on one side of the body.

At 8 months old, Myla was diagnosed with Sturge-Weber Syndrome. She has fought for years - battling seizures and other ailments. She is incredibly strong & we continue to fight to raise funds & awareness for others like her!