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Past Events

Rare Disease Day

Drawing of teddy bear in a colorful striped sweater and scarf. Large letters to the left that say, "I am Rare" We're wearing our stripes for #RareDiseaseDay


"Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.

Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse– but united in purpose.

Rare Disease Day is observed on February 29 this year—the rarest day of the year. Rare Disease Day was set up and is coordinated by EURORDIS and 65+ national alliance patient organization partners. Rare Disease Day provides an energy and focal point that enables rare diseases advocacy work to progress on the local, national, and international levels." ~