Your SWS voice matters to us!
In order to fully understand the far-reaching implications of Sturge-Weber syndrome, Port-Wine Birthmarks, and Klippel-Trenaunay syndrome we must first know how many people are affected by this rare disease worldwide.
Please include as much information as possible. We appreciate your comments or concerns and will respond to them as soon as possible. Your information will only be used to further SWS research and initiatives. Personal information will not be shared with any other organization or for monetary gain (i.e. selling your information).
We look forward to hearing from you! Our door is always open.
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Jason Gilmore, Chief Digital Strategist, ObalonThe Foundation works to assist with the quality of life for patients and to help them socialize and overcome and to be accepted. They feel empowered.
