Contact Us : Who We Are : The Sturge-Weber Foundation

Your SWS voice matters to us!

In order to fully understand the far-reaching implications of Sturge-Weber syndrome, Port-Wine Birthmarks, and Klippel-Trenaunay syndrome we must first know how many people are affected by this rare disease worldwide.

Please include as much information as possible. We appreciate your comments or concerns and will respond to them as soon as possible. Your information will only be used to further SWS research and initiatives. Personal information will not be shared with any other organization or for monetary gain (i.e. selling your information).

We look forward to hearing from you! Our door is always open.

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Your First Name

Your Last Name

Relationship to the patient (if you are not the patient)

Patient's Name (if you are not the patient)

Patient's Birthdate

Phone

Street Address

Apt #

City

State / Provenience

Zip or Postal Code

Country

Type of Manifestations (SWS, PWB, KTS, neurological, ophthalmological, dermatological)? List all that apply.

How did you hear about us?

How can we support you as a patient or caregiver/parent better?

Message for us

Physical Address

6105 S. Main Street, #200
Aurora, Colorado 80016

Office: 973-895-4445
Foundation Email: swf@sturge-weber.org

Jason Gilmore, Chief Digital Strategist, Obalon

The Foundation works to assist with the quality of life for patients and to help them socialize and overcome and to be accepted. They feel empowered.