We exist to improve the quality of life and care for people with Sturge-Weber syndrome and associated Port Wine Birthmark conditions. We support them with collaborative education and advocacy in tandem with translational research as we promote effective management and awareness. 
 

News & Events

The Sturge-Weber Foundation (SWF) announces the addition of Thuy L. Phung, MD, PhD as Director of Pathology Strategies (DPS). This appointment fulfills one of SWF’s goals to advance research of Sturge-Weber syndrome (SWS). The primary goal is to establish a tissue bank in which patient tissues are collected and stored for research. SWS patients have the authority to help steer the course of research by participating in this collective effort. Dr. Phung will be the lead in all pathology collection, storage and tissue requests for research. “We are excited to have Dr. Phung accept this new position. This will fortify our efforts to ensure the SWF global team of diverse researchers will create lasting impact”, stated Karen Ball, SWF Founder and CEO. SWF Chief Scientific Officer, Dr. Jonathan Pevsner, Ph.D. stated, “We are delights to welcome Dr. Phung to this new role in the Sturge-Weber Foundation. She brings passion, excellence and a broad range of expertise that will help us make progress toward solving Sturge-Weber syndrome.”

For those of us who are able to give more, this is the perfect opportunity to get involved in the community and help spread the holiday cheer this season.

If you want to join in and celebrate National Write a Friend Month during this wonderful winter season, here are a couple writing ideas to get you started.

We are here for you! Contact us at swf@sturge-weber.org.