Our Mission

The Sturge-Weber Foundation (The SWF) global mission is to improve the quality of life and care for people with Sturge-Weber syndrome and associated Port-Wine Birthmark conditions through tenacious collaboration with clinical partners and pioneers, education, advocacy, research and friendly support. Learn more and get involved.

What's New In Research

Early MRI diagnosis of Sturge Weber Syndrome type 1 in infants

Computed tomography angiography–assisted embolization of arteriovenous malformation prior to dental extractions in a patient with Sturge-Weber syndrome

Read more news at Science Direct, keyword search Sturge-Weber.

The Official Sturge-Weber Foundation Twitter

@bostonchildrens 1 of 26+ SWF Clinical Care Networks around the U.S. 🥳 #SWFWARRIOR ❤️ https://t.co/5Tk8TgmCEt… https://t.co/2JahrwiYgn

The Sturge-Weber Foundation

September 29, 2022, 4:38 pm

❤️ WE ARE HIRING! Development Manager (part-time), raise funds for our #raredisease and work with a great team! ❤️… https://t.co/4opRjwDHeF

The Sturge-Weber Foundation

September 28, 2022, 3:30 pm

Sponsor: UCB

The Sturge-Weber Foundation (SWF) provides sponsors the opportunity to share information through our public communication sites. SWF does not endorse, prescribe or recommend any products shown in sponsor information. Please consult your doctor for questions regarding any medical information.