Below are some helpful articles to encourage you as you familiarize yourself with your baby's condition. Whatever the reason, in whatever season, the Foundation is here to help you every step of the way.
Thank you to CheckRare.org for this video interview.
ERIN O'BRIEN RICH, KT PATIENT AND FORMER SWF BOARD MEMBER
I reached out to find out what this was, what was going on. This led me to The Sturge-Weber Foundation and Karen Ball. She said, "We have doctors that know a little bit about KT; we can help." Now, we are light years down the road."