Our NEW "Inside SWS: A Warrior's Perspective" series promises to be an inspiring virtual event series where you will hear stories and experiences to uplift your soul. You will hear from a diverse range of voices, including community members, researchers, doctors, and parents. Here are The SWF, we believe in sharing stories that foster a sense of connection and support for all our members. Have a story idea? Contact us and let us know.
Join us for an informative interview-style chat with SWS Visionaries.
If you ever wondered how research works, this is your chance to hear it from two esteemed researchers. Dr. Doug Marchuk and Dr. Kristen Kelly will discuss the process of developing new research on Sturge-Weber and Port-Wine Birthmarks, highlighting how many researchers collaborate for a greater cause.
Bring your kids for this very special children's book reading with Marijke!
“My Magical Mark” follows Sofie and her Port-Wine birthmark as she tells the magical story of fairies who paint beautiful marks on babies before they are born. This charming book highlights the beauty of individuality and reminds readers that these unique marks are symbols of love and diversity.
Marijke has generously agreed to give away a copy of her book too! Must be present during the live drawing to win.
