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Events

NEW! Inside SWS: The Warrior's Perspective

Our NEW "Inside SWS: A Warrior's Perspective" series promises to be an inspiring virtual event series where you will hear stories and experiences to uplift your soul. You will hear from a diverse range of voices, including community members, researchers, doctors, and parents. Here are The SWF, we believe in sharing stories that foster a sense of connection and support for all our members. Have a story idea? Contact us and let us know.

2025 schedule coming soon.


Missed an Event? Watch It Here:

  • We talked with Chelsey Peat about her new memoir "Two Sides of a Face: My Journey with Sturge-Weber" in October 2024. Get to know Chelsey and her journey with SWS.

  • Watch a discussion on the process of developing new research on Sturge-Weber and Port-Wine Birthmarks, highlighting how many researchers collaborate for a greater cause. With Dr. Doug Marchuk and Dr. Kristen Kelly.

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