Clinical Care Network and SWF International Research Network Conference
Mark your calendars for our upcoming Clinical Care Network (CCN) and SWF International Research Network (SWFIRN) Meeting!
We invite doctors, clinicians, researchers, and especially medical students, fellows, and early-career professionals interested in learning about Sturge-Weber syndrome and connecting with experts in the field.
If you are a fellow or junior and would like to work with us to learn more about Sturge-Weber syndrome, please contact us. We have virtual meetings throughout the year to benefit our medical and research communities.
The 2025 SWF SWFIRN / Clinical Care Network Conference
Thursday, September 18 - 20, 2025
Madison, Wisconsin
Event Details:
Registration is free and includes:
- Welcome Reception on September 18, 7:00 p.m.–9:00 p.m.
- Two Breakfasts
- Two Lunches
- One Dinner
- A fun Pass the Torch Walk
- Note: Events on September 19-20 are 8:00 a.m.–5:00 p.m. each day
"As a student, it was incredible to learn so much about Sturge-Weber and the whole scientific process, as well as connect with patients, and I felt very fortunate to be able to meet with so many experts in the field. I don't quite yet know what path my own medical career will take, but I hope to stay involved in some form and continue helping to conduct research!"
– JENNY WANG, MEDICAL STUDENT AT UIC
Hotel Information:
Sheraton Madison Hotel
706 John Nolen Drive, Madison, Wisconsin 53713
- Book online here
- Use the code “SWR” to receive the discounted group rate, or
- Call 1-608-251-2300 and identify yourself as a member of the “2025 Sturge-Weber Research Clinical Sep2025”
- The cutoff date for a group rate will be 08/28/2025
"I attended the SWS conference and found it to be an eye-opening experience. The most impactful part for me was hearing the inspiring stories and experiences shared by families affected by Sturge-Weber Syndrome. Their resilience and strength were truly remarkable, and it reinforced the importance of our research effort in supporting these individuals and their families. I am excited about our ongoing work to make a positive impact in their lives."
–NHU HUYNH, CLINICAL RESEARCH COORDINATOR AT UCSF
Call for Abstracts:
The Sturge-Weber Foundation (SWF) invites you to submit an Abstract for Presentation for the CCN/SWFIRN Meeting.
- All abstracts will be chosen either for short (15-minute) oral presentations or poster presentations. We encourage presentations containing unpublished and ongoing research, to foster and open and collaborative meeting with rigorous discussion. In light of this, there will be no photography or recording of the conference.
- Abstract Submission Deadline: August 25, 2025
- Acceptance Notification: September 1, 2025.
- Full presentations will be due by September 8, 2025.
- Submit your abstract here
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