SWS Month of Awareness Resources
Resources are available for you to share and spread awareness of SWS. Click the images to open in a new window and download.
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ENGLISH, SPANISH, AND FRENCH ALL ON ONE FILE. Let's spread awareness with these adorable Webster Bear coloring sheets! Perfect for engaging young minds in meaningful conversations of acceptance. Teachers, let's empower our students to share stories of facial differences.
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Show your support for The SWF and SWS Month of Awareness with custom social media profile frames.
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These dedicated warrior volunteers are blazing a trail and lighting the way. Learn more and get involved.
You Can Help Spread Awareness by Telling Your Story:
SWF Warriors, you are unstoppable. Every day, you rise above the challenges of SWS—be it seizures, strict medication routines, glaucoma, learning struggles, or even the sting of bullying. Your strength doesn’t just inspire—it empowers.
Remember this: you are so much more than your diagnosis.
Keep pushing forward, hold on to hope, and know you’re never walking this path alone. Your journey has the power to change lives.
This SWS Awareness Month, we want to hear your story. Your story has the power to change lives. Tell us about the day you were diagnosed, the surgery that tested your limits, or the advice you’d give to someone staring down a rare disease.
Your voice matters. Your journey matters.
Share it today—because your story could be the light someone else needs. Be sure to tag us so we can reshare it too.
Passing the Torch. Blazing the Trail. Lighting the way for SWS Awareness.
Give to The Sturge-Weber Foundation today: https://sturge-weber.org/donate-today.html
Use the hashtags: #SturgeWeber #SturgeWeberAwareness #Hope #SWSMonthofAwareness
Be sure to follow our social media channels. We will have events and challenges during the month of May to help with SWS Awareness.
