Privacy Policy for The Sturge-Weber Foundation Mobile App
Effective Date: April 22, 2026
The Sturge-Weber Foundation (SWF) is committed to protecting your privacy. This Privacy Policy explains how information is handled within the SWF mobile application (App).
1. Overview
The SWF App is designed to support individuals and families affected by Sturge-Weber syndrome and related conditions by helping users track information such as:
Medical events (e.g., seizures, symptoms)
Medications
Notes and personal health observations
Reminders and notifications
Important: The App is designed to store all user data locally on your device only.
2. Data Collection and Storage
No Data Collection by SWF
SWF does not collect, store, transmit, or have access to any personal or health data entered in the App.
Local Device Storage Only
All information you enter in the App:
Remains on your device
Is not transmitted to any external server
Is not accessible by SWF or any third party
We do not maintain a database of user information for this App.
3. Notifications
The App may use local notifications (push notifications) to remind you about:
Medications
Events
Other scheduled reminders
These notifications are:
Generated entirely on your device
Not sent from a server
Not tracked or monitored by SWF
You can manage or disable notifications at any time through your device settings.
4. Data Sharing
Because all data is stored locally:
SWF does not share user data with any third parties
No personal or health information is sold, transferred, or disclosed
5. Data Deletion
You have full control over your data.
To delete your data:
You may delete individual entries within the App, or
You may delete all data by uninstalling the App from your device
Once deleted, the data is permanently removed and cannot be recovered.
Requesting Assistance
If you have questions about data deletion, you may contact us at: contact@sturge-weber.org
6. Security
Since all data is stored locally on your device, the security of your information depends on:
Your device’s security settings (e.g., passcode, biometric lock)
Your personal handling of the device
We recommend enabling device-level security protections.
7. Children’s Privacy
The App may be used by caregivers on behalf of minors. SWF does not knowingly collect or store personal data from children through the App, as all data remains on the user’s device.
8. Changes to This Privacy Policy
We may update this Privacy Policy from time to time. Any updates will be posted on this page with a revised “Effective Date.”
9. Contact Us
If you have questions about this Privacy Policy or the App, please contact:
The Sturge-Weber Foundation
Website: https://www.sturge-weber.org
Email: contact@sturge-weber.org
