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2021 SWF Research Program

The Sturge-Weber Foundation’s (SWF) international mission is to improve the quality of life for people with Sturge-Weber syndrome through collaborative education,
advocacy and research support. SWF invites all qualified scientists at universities, hospitals and research institutions (not for profit or profit) to submit applications for SWF Research that supports research relevant to our mission.

The goal of the Program is to support patient-oriented research, basic science research, or translational studies relevant to Sturge-Weber syndrome or related conditions and investing in innovative clinical and basic researchers. We BELIEVE in creating an impact!


  • Studies of Disease Mechanism
  • Use of Novel Technologies
  • Bio-markers and Treatments
  • Cutting Edge and Translational Science
  • Innovations in Clinical Practice and Care
  • Understanding and Alleviating Disease Burden

Engagement Research Grant - up to $5,000 - 2 awards
Small seed research grants for emerging investigators intended to explore a new research concept, pilot a new experiment, undertake a novel or secondary data
analysis, SWS Registry investigations and data mining.

Lisa’s Catalyst Research Grant - up to $40,000
Began in 2016 to honor a patient with Sturge-Weber syndrome. Candidates for Lisa’s Catalyst Research Grant may be post-doctoral (Ph.D. or M.D.) faculty members or newly appointed junior faculty members.

Information Required From the Candidate (in one single PDF file)
Current bio-sketch in NIH format from both the applicant and his/her mentor.
Four page proposal including the following information (including figures or tables):
- Title
- Specific Aims
- How this award will advance the missions of the SWF statement above
- Background and significance
- Research strategy
- Brief summary of training plan from applicant’s perspective
Letter of support from the mentor detailing his/her support of and commitment to the applicant and the proposed research and training plan. The letter may be sent separately or included in the applicant’s file. It should describe:
- How the proposed research fits into the mentor’s research program
- Expertise and experience in the area of research proposed
- Mentor’s prior experience in the supervision, training and mentoring of research 
- Potential for applicant’s future research career

June 15, 2021 Invitation to submit application. Inquires welcome
July 23, 2021 Full application due
August 12, 2021 Announcement of awardees
September 1, 2021 Award start date
June 30, 2022 Award end date

Karen Ball, CEO and Founder
Office: 973.895.4445