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CCN / SWFIRN Conferences

For Professionals

For Professionals

CCN/SWFIRN In-Person Professional Conferences

Professional Organization Conferences:

  • NINDS, Bethesda, MD, July 23-24, 2024
  • ARVO, Seattle, May 5-9, 2024
  • PeDRA, Phoenix, Oct. 24-26, 2024
  • Child Neurology Society, San Diego, Nov. 11-14, 2024
  • ASLMS, Baltimore, April 11-14, 2024

Visit our Events Calendar to find more information on each of these events.

The next CCN/SWFIRN Meeting: September 18, 2025

The SWF SWFIRN / Clinical Care Network Conference: Sturge-Weber Syndrome: Moving Translational Science Forward Into the Clinical Realm, was held on September 14-17, 2023 in Charlotte, NC

If you are a fellow or junior and would like to work with us to learn more about Sturge-Weber syndrome, please contact us. We have virtual meetings throughout the year to benefit our medical and research communities.

THANK YOU to all our generous speakers who donated their time and expense to attend this event: (listed in order of speaking):

  • Karen Ball, SWF CEO and Founder
  • O'Reilly Family
  • Brian Moseley, MD
  • Jeff Loeb, MD, PhD
  • Biswajit Maharathi
  • Matt Shirley, PhD
  • Nathan Lawson, PhD
  • Connell Family
  • Sana Nasim, PhD
  • Sarah Oikemus, PhD
  • Feben Messele, MS2
  • Anna Pinto, MD
  • Csaba Juhasz, MD
  • Kristina Juhlich, MD
  • Luis Sandoval, PhD
  • Mike Onken, PhD
  • Francesca Galeffi, MD
  • Osama Harraz, PhD/Virtual
  • Kimihiko Banno, MD, PhD / Virtual

Thank you to Duke Medical School and Doug Marchuk for sponsoring the welcome reception.

*Funding for this conference was made possible (in part) by (1R13NS134286-01) from the National Institute of Neurological Diseases and Stroke (NINDS). The views expressed in written conference materials or publications and by speakers and moderators do not necessarily reflect the official policies of @nihgov; nor does mention by trade names, commercial practices, or organizations imply endorsement by the U.S. Government.