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The SWF Grant Program

The application period for 2020 is now closed.  Announcements on this year's recipients will be announced soon.

Thank you for your continued support!


2019 SWF Grant Program Recipients

The Sturge-Weber Foundation was able to provide much needed funding to two researchers through the generous donation of an anonymous donor.  The Lisa’s Catalyst Grant is an annual fellowship grant that is awarded to researchers who have projects that specifically further the medical research being done for Sturge-Weber syndrome and other Port-Wine birthmark conditions.

Sebastien Gauvrit, Ph.D., received $25,000 for his project “Investigating Sturge-Weber syndrome vascular defects using zebra fish”. Dr. Gauvrit is at the Max Planck Institute for Heart and Lung Research/Department of Developmental Genetics.  This project will: generate novel genetic tools in zebra fish to model SWS.

Lisa Arkin, MD, of the University of Wisconsin School of Medicine & Public Health/Department of Dermatology, received $19,245 for her research project. The purpose of her research is to use molecular analysis with clinical and imaging assessment such as optical coherence thermography (OCT).

 

The Sturge-Weber Foundation was able to provide much needed funding to several researchers through the generous donation of an anonymous donor as well as all of our supporters. Catalyst Grants were provided to several researchers who specialize in projects related to Sturge-Weber syndrome and other Port-Wine birthmark conditions.
Sarah E. Wetzel-Strong, Ph.D. of Duke University School of Medicine/Department of Human Genetics.. Dr. Wetzel-Strong received $25,000 for her project “Characterizing lesion development in a mouse model of Sturge-Weber syndrome”. This research will test several hypothesis surrounding GNAQ.

Four other researchers and one SWF specific project were provided funding to continue their research studies. The recipients of these awards are:


Nathan Lawson, Ph.D.: $7,000 - Generation of a zebrafish model for modeling Sturge-Weber syndrome
Naiem Issa, Ph.D.: $5,000 - GNAQ Inhibitor Compound Study
Jonathan Pevsner, Ph.D.: $5,000 - SWS Registry and Research
Sara Sabeti, $5,000 - SWS Consensus Paper
SWF Biorepository Seed Funding, $10,000