Pictured Back Row: Thurein Htoo; Francesca Galeffi, MD; Jan Pruszak, MD; Aliece Goodman, PhD; Michael Fautsch, PhD; Sana Nasim, PhD; Csaba Juhasz, MD, PhD; Michael Onken, PhD; and Jeff Loeb, MD, PhD // Seated Front Row: Doug Marchuk, PhD; Anna Pinto, MD, PhD; Joyce Biscoff, PhD; and Matt Shirley, PhD // Not Pictured: Lisa Arkin, MD; Beth Drolet, MD; and Naiem Issa, PhD
We're Changing Lives Through Collaboration & Innovation
At The Sturge-Weber Foundation, we’re all about teamwork. We partner with researchers, doctors, clinicians, and rising medical professionals to complete one goal: a cure for Sturge-Weber syndrome. Here’s how we’re making it happen:
A Network That’s Making Waves...
Throughout the year, we host events designed to unite the research and medicine communities. These gatherings aim to improve patient care and create breakthroughs in therapies.
The SWF Clinical Care Network (CCN) is recognized across the globe! With over 25 centers, we provide comprehensive care for adults and children with:
- Port Wine birthmarks (PWB)
- Sturge-Weber syndrome (SWS)
- Klippel-Trenaunay syndrome (KTS)
Behind each center is a team of specialists, such as dermatologists, neurologists, ophthalmologists, and mental health professionals, working together to create customized treatment plans. This team-based approach ensures every patient gets the thoughtful, coordinated care they deserve.
...And Driving Research Forward
Our SWF International Research Network (SWFIRN) is where collaboration thrives. We bring together experts from all over the world to:
- Conduct groundbreaking research
- Develop better treatment models
- Establish consensus guidelines
- Power clinical studies
Future-Focused
We’re not just working for today—we’re building for tomorrow. That’s why we welcome medical students, fellows, and early-career professionals to join us. Learn from leading experts, connect with peers, and help shape the future of Sturge-Weber syndrome care and research.
Be Part of the Mission
Ready to make an impact? Join us at one of our events that transform lives through comprehensive care and research. Together, we can make a difference.
New to The SWF? Contact us for more information on how YOU can participate in future SWS care or research.
