Who Should Attend?
Are you a caregiver, SWS patient, doctor, or clinician? This event is for YOU! Get the latest scoop on Sturge-Weber syndrome.
What We'll Cover:
• Neurology • Ophthalmology • Transitioning to Adulthood • Advocacy and More!
This is a free event that includes breakfast and lunch with networking courtesy of our Clinical Care Network member the Children's Hospital of Michigan.
Location:
3901 Beaubien Street, Detroit, MI 48201
Room: 1st Floor Classrooms A, B, C and D
AGENDA
8:00 to 8:30 am
Breakfast
8:30 to 9:00 am
Welcome and Introduction
Julia Terrell, The Sturge-Weber Foundation, Director of Community Relations
9:00 to 9:45 am
Diagnosis and Neurologic and Behavioral Manifestations
Aimee F. Luat, MD, Co-Director CHM Epilepsy Program, Central Michigan University
Michael Behen, PhD and Nore Gjolaj, PhD, Co-Directors and Neuropsychologists, The Imagine Center of Psychological Health
9:45 to 10:00 am
Coffee Break
10:00 to 10:30 am
Neuroimaging in SWS
BVMC and NIH studies on SWS
Csaba Juhasz, MD, PhD, Professor, Wayne State University
10:30 to 11:00 am
Ophthalmologic Manifestations
Lisa Bohra, MD, Chief, CHM Pediatric Ophthalmology
11:00 to 11:30 am
Skin Manifestations
Tor Shwayder, MD, Director, Pediatric Dermatology, Henry Ford Hospital
11:30 am to 12:00 pm
Transition to Adulthood
Maysaa Basha, MD, Interim Chair Department of Neurology, Co-Director CHM Epilepsy Program, Wayne State University, Detroit Medical Center
12:00 to 12:20 pm
Valtoco Advocate
(Valtoco is a rescue medication)
12:20 to 1:30 pm
Lunch and Networking
*Speakers and agenda are subject to change.
