Together, we can ignite change.
The SWF is more than a foundation; it’s a family, united in a mission to better the lives of those with SWS, PWB, and KTS, and striving to develop effective treatments.
Join us in making a real difference!
Resources
"Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.
Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse– but united in purpose.
Rare Disease Day is observed on February 28 this year. Rare Disease Day was set up and is coordinated by EURORDIS and 65+ national alliance patient organization partners. Rare Disease Day provides an energy and focal point that enables rare diseases advocacy work to progress on the local, national, and international levels." ~ www.rarediseaseday.org
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Download a variety of social media images to share on your pages. English, Españiol, and French are available.
Suggested posts:
Embracing my uniqueness on Rare Disease Day with The Sturge-Weber Foundation. Remember, I may be rare, but I'm also one in a million! Join me in spreading awareness and support for those living with rare diseases. #RareDiseaseDay #SturgeWeberFoundation #lamRare -
Download. Print. Post at your doctor's office, community center, school, or work.
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Purchase your official SWF Rare Day Merch in the shop. Best of all, a portion of all proceeds benefit our research, education, events, and programs. English, Españiol, and French are available.
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Rare Disease Day is held on the last day of February. Resources at www.rarediseaseday.org and www.rarediseaseday.org
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Or ask your favorite hometown brewery to support Zebra Hop for a rare cause.
