We exist to improve the quality of life and care for people with Sturge-Weber syndrome and associated Port Wine Birthmark conditions. We support them with collaborative education and advocacy in tandem with translational research as we promote effective management and awareness. 
 

News & Events

There’s more to Global Hug Your Kids Day than just giving your kiddos a hug or two. If you want to celebrate today, here are some fun ideas to get you started.

Setting goals is simple. We’ve all heard different phrases, acronyms and ways to properly set a goal for life. However, accomplishing goals can be a whole different task.

After over 30 years of dealing with Kaelin’s challenges, I can take the wait and see approach as opposed to hold my breath and be ever ready to run! That attitude doesn’t mean we don’t have a plan and aren’t prepared for all the “What ifs” that are surely ahead. It means like the wild fire season in Colorado you learn to accept the things that are out of your control. You learn to savor every beautiful sunrise and sunset when your kids are giggling or trying to catch fireflies. You learn…this too shall pass.

We are here for you! Contact us at swf@sturge-weber.org.