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Sturge-Weber Syndrome Month of Awareness starts May 1st. Learn How to Get Involved Today!

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Brain Vascular Malformation Consortium

Saturday, June 3, 2023Tuesday, June 6, 2023

Bellevue, WA

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Karen Ball, CEO and SWF Founder will be at the BVMC meeting representing patients and researchers. This event is not open to the public.

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Events Home
2026 SWF Family Reunion
In-Person Mini-Summit, Boston
NEW! SWF Gaming Lounge
Inside SWS: The Warrior's Perspective
Be the torch. Be the light.
SWF Virtual Educational Events
SWS Adult Patient Chats
SWS Caregiver Chat
UC Irvine Mini-Summit
Chat with Karen Ball, CEO
Month of Awareness
- Month of Awareness Events
- Month of Awareness Resources
Events Calendar

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Phone 973-895-4445

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Monday - Friday; 8 AM - 4 PM MST

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Sicklerville, NJ 08081

973-895-4445

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Privacy Policy

What Information Do We Collect? When you visit our website you may provide us with two types of information: personal information you knowingly choose to disclose that is collected on an individual basis and website use information collected on an aggregate basis as you and others browse our website.
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Notice of New Services and Changes Occasionally, we may use the information we collect to notify you about important changes to our website, new services and special offers we think you will find valuable. As a user of our website, you will be given the opportunity to notify us of your desire not to receive these offers by clicking on a response box when you receive such an offer or by sending us an email request.
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How Do We Protect Your Information? Information Security -- We utilize encryption/security software to safeguard the confidentiality of personal information we collect from unauthorized access or disclosure and accidental loss, alteration or destruction. Evaluation of Information Protection Practices -- Periodically, our operations and business practices are reviewed for compliance with organization policies and procedures governing the security, confidentiality and quality of our information. Employee Access, Training and Expectations -- Our organization values, ethical standards, policies and practices are committed to the protection of user information. In general, our business practices limit employee access to confidential information, and limit the use and disclosure of such information to authorized persons, processes and transactions.
How Can You Access and Correct Your Information? You may request access to all your personally identifiable information that we collect online and maintain in our database by emailing us using the contact form provided to you within the site structure of our website.
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Ongoing support is important to enabling projects to continue their work, so we encourage donors to continue to contribute to projects over time. But if you must cancel your recurring donation, please notify us.

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