Rare Disease Day at NIH 2024 - Bethesda, MD
Sponsored by the National Center for Advancing Translational Sciences (NCATS) and the National Institutes of Health (NIH) Clinical Center, Rare Disease Day at NIH will be held both in-person at the NIH main campus (Natcher Conference Center) and virtually on Thursday, Feb. 29, 2024, from 9 a.m. to 5 p.m. EST. The event aims to raise awareness about rare diseases, the people they affect, and NIH collaborations that address scientific challenges and advance research for new treatments. The goals are to:
• Demonstrate the NIH's commitment to helping people with rare diseases through research.
• Highlight NIH-supported rare diseases research and the development of diagnostics and treatments.
• Initiate a mutually beneficial dialogue among the rare diseases community.
• Exchange the latest rare disease information with stakeholders to advance research and therapeutic efforts.
• Shine a spotlight on stories told by patients living with a rare disease, their families, and their communities.
Rare Disease Day at NIH seeks to bring together a broad audience including patients, patient advocates, caregivers, healthcare providers, researchers, trainees, students, industry representatives, and government staff. The event is free and open to the public. Attendees are expected to exercise professionalism, consideration, and respect when speaking, posting, and communicating with others. This year’s event will feature panel discussions, rare disease stories, in-person exhibits and scientific posters, and an art exhibition.
Free event.
CLICK 'REGISTER HERE' TO GET ALL THE DETAILS FOR IN-PERSON AND VIRTUAL.
