The Years Tell Us Much, That the Days Never Knew!
Raise your hand if you have family photos on your refrigerator! As you can see from my refrigerator, I am a pack rat and a huge photo lover. The days go by so quickly, and the photos of my kids when they were younger remind me of what I’ve overcome during the ensuing years. They also remind me that times of trouble during them can often seem so overwhelming… It seems as if they will never resolve and peace will return. Yet, the years tell us much, that the days never knew!
The grown-up photos remind me of what a job I’ve done in guiding them into adulthood…good, bad, and ugly! Yes, believe it or not, Kaelin didn’t come with a manual, and Derek definitely didn’t! The other photos remind me that without family and friends to share the journey with me, what would life mean? I only hope I’ve been as good a source of comfort and inspiration as they have for me. The 'lil quips and sayings also reassure me and uplift me. As many of you who know me do know, I live in Joy and seek it every day in every way. Random chats with strangers in the grocery line. Silly 'lil songs in my head that make me laugh. Facebook reels are to be shared with friends and family to lighten their day. My parents taught me a long time ago to laugh in the face of adversity. Really roll with it when you’re in the trenches because you WILL come out on the other side!
I hope I’ve been able to uplift each of you along your journey that we have shared with Sturge-Weber syndrome. Together, we are showing a new generation of parents and care providers how to navigate the unexpected medical and life events. Our hard-fought and won challenges bring hope and empower them to overcome, too. Thank you for being part of my years and the years of the SWF.
Lots of fun and exciting events are upcoming this Spring. Look forward to seeing y’all participate and join in the fun and learning. Cannot wait to see y’all this summer in San Antonio!!! We are ready to kick up our heels and have some fun while we reconnect and learn together. Stay safe and healthy… hugs and love, too! Karen
PS. It’s ok to forget what all the SWF does for support, research, and advocacy amidst your daily lives, but we hope you won’t forget how well cared for you are!
With love, faith, and hope,
Karen Ball
CEO and Founder
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