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May is The SWF's

Month of Awareness

Get Involved

SWF Month of Awareness


We are stronger because we are united.

Each year, SWF promotes awareness of SWS during the month of May.

 Whether a patient or caregiver, this is our opportunity to showcase YOU through the victories and the struggles of living with Sturge-Weber Syndrome every single day.

This year we are focusing on being UNITED.

Because we are stronger when we are united.

It takes everyone working for one common goal together to make a difference in the SWF community.

For 35 years we've been here for you. For a reason, a season, or a lifetime.

How can you help during SWF Month of Awareness (MOA)?